about CHASA
The Children's Hemiplegia and Stroke
Association, CHASA, is volunteer-based nonprofit organization founded
by parents of children with hemiplegia in 1999
to provide assistance, information and counseling to families of children who have
hemiplegia, hemiparesis, or hemiplegic cerebral palsy. Often, these
conditions are caused by stroke in an infant.
Administrative costs are kept
to a minimum, so that money raised can go directly towards education,
information, support and research that will benefit families of children
who have hemiplegia.
CHASA provides a 500+ page website, an
e-mail support group with over 1200 members, plans and hosts an annual retreat and medical conference
for families of children who have hemiplegia, supports local
family events, funds pilot research studies, provides family retreat scholarships, and
provides college scholarships for young adults who
have hemiplegia. CHASA leaders founded
Childhood Stroke Awareness Day, the first Saturday in May.
Board of Directors
Joni Stasiak, President
Heidi Jameson, Vice President
Nancy Atwood, Treasurer and Founder
Kevin Dyer, Assistant Secretary
Officers
Diane Kolpin
Jackie Haley
Janet Hinson
Medical Advisors
John Kylan Lynch, DO is
currently a Senior Staff Fellow in the Neuroepidemiology Branch and a
co-investigator on a pilot study of strokes in children at the National Institutes of
Neurological Disorders and Stroke.
Gabrielle deVeber MD FRCP(C), MHSc Dr. deVeber
has been a staff neurologist in the Division of Neurology, as part-time consultant since
1995 and joined the full time staff in 1998. She is the Director of the Childrens
Stroke Program at HSC. Dr. deVeber holds a Scientist appointment with the Research
Institutes Population Health Sciences Program and is an Associate Professor at the
University of Toronto. Dr. deVeber holds several grants from the following agencies: Heart
and Stroke Foundation of Canada, the Canadian Institute for Health Research; she also
holds several institutional grants and one funded by a private childrens research
foundation. Associate Professor, Dept. of Pediatrics, University of Toronto
Scientist, Population Health Sciences, Hospital for Sick Children Research Institute,
Director, Children's Stroke Program, Division of Neurology,
The Hospital for Sick Children, Toronto, Canada.
Donna Ferriero, M.D. is Chief of Child Neurology at
UCSF Children's Hospital, and a Professor of Neurology and Pediatrics at the University of
California, San Francisco. She is a recognized expert in the care of newborns and
children with neurological disabilities and director of the Neonatal Brain Disorders
Center at UCSF, funded by the National Institute of Neurological Diseases and Stroke to
study the mechanisms of ischemic, or blood flow, injury in the neonatal brain.
Rebecca Ichord, M.D. is an Assistant Professor of
Neurology and Pediatrics at The Children's Hospital of Philadelphia. Dr. Ichord has
a special interest in Neonatal Brain Injury and Stroke. She is board certified in
Pediatrics, Psychiatry and Neurology, with expertise in Child Neurology.
Ruth Nass, M.D. is a
pediatric neurologist at New York University Medical Center and has a long term research
interest in the cognitive outcome of hemiplegic cerebral palsy.
Van Miller, PhD, M.D. is
Board-Certified in Pediatrics and Board-Certified in Neurology with Special
Qualification in Child Neurology. He is in private practice at Texas Child Neurology
in Plano, Texas.
Robert Bunata, M.D. is Board Certified in Orthopedic
Surgery and has an interest in upper extremity surgery in children who have
hemiplegia. He is in private practice and serves patients at Cook Children's
Hospital in Fort Worth, Texas.
Steven R. Stasiak, M.D., Dr. Stasiak is a board
certified family physician in Canton, Ohio and has a son who had a stroke at birth.
Joni Stasiak, M.D., Dr. Stasiak is a board certified
family physician in Canton, Ohio and has a son who had a stroke at birth.
Donna Witten, MS, PT. Ms. Witten is a Physical
Therapist in Dallas, Texas.
Membership: The CHASA bylaws state that
the organization has no members.
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The information contained in this Children's Hemiplegia and Stroke Association (CHASA) Web
site is not a substitute for medical advice or treatment, and CHASA recommends
consultation with your doctor or health care professional. |