Pediatric Stroke Awareness – 31 Days 31 Ways

April 24, 2013 By
2013-pediatric-stroke-awareness-collage-ribbon-cw

May is Pediatric Stroke Awareness Month May 1 Like CHASA on Facebook. May 2 Write your child's story and share it on a Firstgiving page. The world needs to know our stories. (You don't have to fundraise on Firstgiving. You can simply share your story if you'd like.) May 3 Make this your cover picture on facebook. Photo created by Chandra Whitfield. May 4 Streak your hair purple. Invite your friends to a girl's night out at a local salon and give everyone a purple streak. May 5 Tweet daily that Kids Have Strokes, Too and provide a link to http://www.CHASA.org for more information May 6 Email the CHASA Pediatric Stroke Awareness Fact Sheet or your employer, library, or place of worship and ask them to add pediatric stroke facts or your child's story to their newsletter. May 7 Share a link to the 2013 Pediatric Stroke and Hemiplegia Awareness Montage May 8 Paint your nails purple with a ribbon design or get a Pediatric Stroke Awareness tattoo. May 9 No … [Read more...]

Filed Under: Pediatric Stroke Awareness, Volunteers, You Can Help Tagged With: , , , , , , ,

These Families are Streaking for Pediatric Stroke

March 30, 2013 By
Streak for Pediatric Stroke Awareness Month

May is Pediatric Stroke Awareness Month. Do you know that CHASA proclaimed the first Pediatric Stroke Awareness Day way back in 2002?  A couple of moms were tired of hearing, "I didn't know a baby could have a stoke." Sound familiar? In May, families around the world are letting others know that Kids Have Strokes, Too. Some are asking local government to proclaim May as Pediatric Stroke Awareness Month. Others are hosting events to raise funds and awareness and our online community is setting up online Streak for Pediatric Stroke pages.  Meet a few of these families below... The Mory Family is Streaking for Pediatric Stroke Awareness - When Mikey was a few months old we noticed he was only reaching for his toys with his left hand. His pediatrician joked that we should teach him to box or pitch since he'd be a lefty. Eventually we decided this was not normal and we had him tested with an MRI. Our sweet little baby survived a stroke in-utero which damaged the left side of his … [Read more...]

Filed Under: Pediatric Stroke Awareness, You Can Help Tagged With: , , , , , , ,

2013 Pediatric Stroke Awareness Events

March 20, 2013 By
stride on for pediatric stroke

We love our volunteers! They've set up the following events to benefit CHASA and increase Pediatric Stroke Awareness. Let us know about any events you're planning that will benefit the Children's Hemiplegia and Stroke Association and help us keep Helping Kids with Hemiplegia.  This page will be updated weekly, so watch for new events or plan your own! April 13, 2013  Ride 4 Riley Hosted by the Volkel Cycling Team in honor of pediatric stroke survivor Riley Valkenburg, Netherlands   May 1, 2013 - May 31, 2013 Streak for Pediatric Stroke Hosted by Children's Hemiplegia and Stroke Association (CHASA) Virtual Event   May 4, 2103  Stride On For Pediatric Stroke Awareness Hosted by Matt & Shiloh Little in honor of their little pediatric stroke survivor, Jace Olathe, Kansas May 4, 2013 Walk for Pediatric Stroke Awareness Hosted by Annette Brennan Colchester, Connecticut May 4, 2013 2nd Annual Strikes for Pediatric Stroke Hosted by Abbe and Jeffrey Harpp, in … [Read more...]

Filed Under: Events, Pediatric Stroke Awareness, Volunteers, You Can Help Tagged With: , , , , , , , , , , , ,

Pediatric Stroke Awareness Month 2013 Proclamations

February 22, 2013 By
Pediatric Stroke Awareness Month - Survivor

Kids Have Strokes, Too!  Volunteers are sharing that message across the country. May is Pediatric Stroke Awareness Month. Ask your governor and mayor to declare May as Pediatric Stroke Awareness Month! How to Request a Pediatric Stroke Awareness Month Proclamation View 2012 Pediatric Stroke Awareness Month Proclamations View 2013 Pediatric Stroke Awareness Month Proclamations If you've received a proclamation, let us know by filling out this form 2013 Pediatric Stroke Awareness Month Proclamations Alabama - declared May as Pediatric Stroke Awareness Month – by Governor Robert Bentley- submitted by Lisa and Emma Grace McDougal Alabama - City of Killen - The Town Council declared May as Pediatric Stroke Awareness Month - submitted by Lisa and Emma Grace McDougal California - pending - submitted by Lisa Coonan Colorado declared May as Pediatric Stroke Awareness Month – by Governor John Hickenlooper – submitted by Val Murray and Samantha … [Read more...]

Filed Under: Pediatric Stroke Awareness, You Can Help Tagged With: , , , ,

2013 CHASA Streak for Pediatric Stroke Awareness

February 19, 2013 By
Streak for Pediatric Stroke Yard Art

Pediatric Stroke Survivors often have multiple disabilities. If these little stroke survivors can do some of the hard things they do every single day of their lives, then we can do something to honor them for 31 days .  It's time to get your streak on.  How will you Streak for Pediatric Stroke? Can you streak for 31 days in May? Set Up Your Streak for Pediatric Stroke Awareness Page Set up your Streak for Pediatric Stroke  Awareness Page on Firstgiving. Share your story and help us raise funds. The world needs to hear about our little stroke survivors. If you’re the friend of a survivor – even better – tell us how they inspire you. Pediatric stroke survivors have daily struggles with: walking tying shoes talking reading remembering to take seizure medicine trying not to trip and fall down stretching and therapy exercises memory problems dealing with bullies ignoring stares fighting for the ability to learn and access their community Streak for … [Read more...]

Filed Under: Fundraising, Pediatric Stroke Awareness, Uncategorized, You Can Help Tagged With: , , , , , ,

5K, Marathons, Bikes, Walks and Runs for CHASA

January 5, 2013 By

We're often contacted by volunteers who would like to host a large walk or run. Because these events can be complicated and sometimes expensive to set up, we encourage volunteers to participate in an established walk or run. The established events usually have a greater number of participants, meaning that you'll have more people to share your awareness story with. It's also easy to raise funds for CHASA in addition to raising awareness. You can set up a fundraising page to benefit CHASA. If you are absolutely certain you want to host your own event, information relating to this is provided below under "Setting Up Your Own Walk or Run to Benefit CHASA". Raising Pediatric Stroke or Hemiplegic Cerebral Palsy Awareness - Helpful Hints for Participating in an Established Walk or Run Check with your physician to make sure you're in great shape and can participate in an athletic event like a walk or run. Locate and register for a race in your area - we suggest you choose an event … [Read more...]

Filed Under: You Can Help Tagged With: , , , , , , ,

Dad Runs Marathon to Help Kids with Hemiplegia

November 14, 2012 By
Philadelphia-Marathon-Run-For-Pediatric-Stroke

David Sexton is a software development manager who lives in Westfield, N.J., with his wife, their daughter and son. When his son was found to have cerebral palsy five year ago, he turned to writing as a way to sort out his thoughts. David isn't stopping with just writing - he's running in the Philadelphia Marathon this weekend in an effort to raise funds for the Children's Hemiplegia and Stroke Association (CHASA). David says CHASA has been invaluable in helping provide support, resources, and knowledge about hemiplegia. Support CHASA and encourage this great dad to keep moving for the cause by donating here. On that same page, you'll find links to the inspirational blog posts written by David about his family's experiences with  having a son with hemiplegic cerebral palsy and a pediatric stroke diagnosis. … [Read more...]

Filed Under: Hemiplegic Cerebral Palsy Awareness, Pediatric Stroke Awareness, You Can Help Tagged With: , , , , , , ,

Pediatric Stroke Awareness Tree

November 7, 2012 By
Chicago Pediatric Stroke Awareness Tree

We know it's early, but you'll need time to make your ornaments. In 2011, Tiffaney Carlisle, the mom of a pediatric stroke survivor from Illinois, approached the Children's Hemipelgia and Stroke Association (CHASA) about sponsoring a pediatric stroke awareness tree at the Brookfield Zoo. The CHASA board thought it was a great idea, so we ordered a tree.  The tree was seen by thousands of people and was a great way to spread the word that Kids Have Strokes, Too. CHASA will sponsor this project again in 2012. Click on the photo for a better view of the tree. Your Pediatric Stroke or Hemiplegia Awareness Tree You can set up a similar project in your community. It's pretty easy and a fun way to raise awareness and funds to help our little stroke or hemiplegic cerebral palsy survivors. Think of a highly visible location for your tree - shopping center, doctor or dentist office, veterinary office, your employer's building, schools, places of worship, restaurants, local mom and pop … [Read more...]

Filed Under: Hemiplegic Cerebral Palsy Awareness, Pediatric Stroke Awareness, You Can Help Tagged With: , , , , , , ,

NYC Marathoner Runs for Infant Stroke Survivors

November 2, 2012 By
Susan-Dodge-NYC-Marathon- Running for Pediatric Stroke Survivors

This story is about community. Two moms. One little boy who survived a stroke. And helping pediatric stroke survivors worldwide. Susan Dodge will run in the 2013 NYC Marathon on Sunday, November 4th, and parents of pediatric stroke survivors from around the world will cheer her on - some in person and many in their hearts. Susie's Story In May of 2011 I gave birth to my second child , Samantha. After gaining 50 pounds I knew that I need to do something to lose it. I had a 20 month old, a newborn and not a lot of free time, so I got creative. I got a stroller and started running. After a few months of running I decided to do some organized runs to qualify for the New York city Marathon. By December, I was qualified and excepted to run the marathon. Now the real work began. Running became my daily mediation and my healing to much of life; however, I still had this feeling that I was running the marathon without purpose. I had lost the weight and felt great, but I knew something was … [Read more...]

Filed Under: Events, You Can Help Tagged With: , , , , , , , ,

Hemiplegia Awareness, Pediatric Stroke Awareness, and Cerebral Palsy Awareness Shirts – Order by November 2nd

October 9, 2012 By
Pediatric Stroke Awareness Shirt

You asked for them - Hemiplegia Awareness Shirts, Pediatric Stroke Awareness Shirts, Cerebral Palsy Awareness Shirts, and Kandu Shirts - and CHASA is going to deliver! Shirt orders closed on November 2, 2012. Shirts will begin shipping in one month. Wear them to the grocery store, football games, or to the mall. You'll reach hundreds of people and let the world know more about our kids. These will be great to give away as holiday gifts so others can help us spread the word. You might even set up your own Hemiplegia, Pediatric Stroke, or Cerebral Palsy Awareness event in 2013.  Shirts  Let's show our kids that we Believe in them! Orders were accepted until November 2, 2012.  CHASA Board Members will begin shipping shirts later in early December. We're sooooo excited!! The Hemiplegia Awareness Shirts, Pediatric Stroke Awareness Shirts, Cerebral Palsy Awareness Shirts will be GRAY, similar to the shirts featured on the three children in the photo. The Kandu shirt will be … [Read more...]

Filed Under: Hemiplegic Cerebral Palsy Awareness, Pediatric Stroke Awareness, You Can Help Tagged With: , , , , , , , , , ,

Pediatric Stroke Awareness Heroes – Senator Blumenthal and Patch’s Family

August 10, 2012 By

When Patch was 9 months old, his parents discovered that he'd had a stroke before he was born. Patch was just a baby and he needed therapy to help him learn many of the essential developmental milestones like eating, rolling over, sitting up, walking, talking, and using his left hand and fingers. Patch's parents took him to physical, occupational, and speech therapy until one day, their private insurance company decided that it was no longer going to pay for therapy. Patch's family spent hours on the phone and sent multiple letters attempting to have their insurance company reinstate the the therapy coverage. Their efforts were not successful, so Patch's parents contacted the office of U. S. Senator Richard Blumenthal of Connecticut for assistance in convincing the insurance company that these therapies were a very important part of Patch's recovery from his perinatal stroke. With Senator Blumentahl's assistance and letters from Patch's doctors and therapists, the insurance company … [Read more...]

Filed Under: Pediatric Stroke Awareness, You Can Help Tagged With: , , , , ,

Pediatric Stroke Awareness Month 2012 Proclamations

May 1, 2012 By
TX-College-Station-Natali_Ocampo

Alabama declared May as Pediatric Stroke Awareness Month - by Governor Robert Bentley- submitted by Kimberly Ketler Arizona - waiting - submitted by Chandra Whitfield California - waiting - submitted by Eileen Vancleave Colorado declared May as Pediatric Stroke Awareness Month - by Governor John Hickenlooper - submitted by Val Murray Connecticut - waiting - submitted by Annette Brennan and Sara Lucuk Idaho declared May as Pediatric Stroke Awareness Month - by Governor C. L. "Butch" Otter - submitted by Melissa Asmussen Illinois declared May as Pediatric Stroke Awareness Month - by Governor Pat Quinn - submitted by Tre Dobek Illinois - City of Taylorville declared May as Pediatric Stroke Awareness Month - by Mayor Greg Brotherton - submitted by Deborah Hammac Iowa - waiting - submitted by Natasha Wright Indiana declared May as Pediatric Stroke Awareness Month - by Governor Mitch Daniels - submitted by Vanessa Moore and Abbe Harpp Kentucky declared May as … [Read more...]

Filed Under: Pediatric Stroke Awareness, You Can Help

Streak for Pediatric Stroke iPad Contest

April 27, 2012 By
Streak for Pediatric Stroke

Enter CHASA's Streak for Pediatric Stroke iPad Contest! CHASA will give away a new iPad to one lucky person. Set up a fundraising  page at Firstgiving and start asking friends, family, and your community to donate. For each $25 donation on your page, you'll receive one entry in the contest. Bring in more donations and you'll have more entries and a better chance to win the iPad.  On June 15th, we'll put all the entries into a big box; give it a shake; and pull out the name of the lucky winner. This is CHASA's only major fundraiser, so please help us help these little stroke and hemiplegia survivors. Money raised will help CHASA help families purchase an orthotic (foot brace) to help a little stroke survivor learn to walk and maintain balance. Money will also help us send a parent and child to the national retreat where they can meet others - it's hard to think you're the only kid who wears a brace or takes medicine every day to stop seizures. Money will also fund college and … [Read more...]

Filed Under: Events, You Can Help

Pediatric Stroke Streak – Sidewalk + Chalk

April 9, 2012 By
awareness chalk christy ellis

Get Your Streak on for Pediatric Stroke Awareness Month... It starts in May! Pediatric Stroke Awareness Month Idea #1 Write some facts about pediatric stroke on a sidewalk. It's fast, easy, cheap, and you can reach a lot of people with our message. 1 in 2800 babies will have a stroke. Kids Have Strokes, Too My baby had a stroke at birth. I'm a pediatric stroke survivor. Yes, Kids Have Strokes. Pediatric stroke research is underfunded. Tell someone. It's Pediatric Stroke Awareness Month. CHASA.org       … [Read more...]

Filed Under: Pediatric Stroke Awareness, Volunteers, You Can Help Tagged With: , , , , , ,

Name the New Children’s Hemiplegia and Stroke Association Mascot

April 4, 2012 By
CHASA Mascot

We need your help!  CHASA has been searching for a mascot and we were inspired by a very special penguin who lives at the Santa Barbara zoo. His name is Lucky, and he wears a special shoe like the ones worn by so many of our kids with hemiplegia. We were so excited to hear about Lucky and how strong and brave he is that the CHASA board decided to adopt a penguin as our mascot.  But, our penguin mascot needs a name, and we need you to send us your ideas for a name for the CHASA mascot. The CHASA board will choose the penguin's name and the winner (or winners) will receive a special recognition for their help in naming the new CHASA mascot. And, you might win a $50 gift certificate! Where do I send the penguin's name? Fill out this form and include your suggestions for the CHASA penguin's name. Should I give the penguin a girl name or a boy name? You should give the penguin a name that can be used for either a girl or boy penguin, since both girls and boys can have hemiplegia or … [Read more...]

Filed Under: Gadgets, Apps & Fun Things, You Can Help