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finances

Many times, the financial burden of children with stroke is not met by traditional insurance. We hope to gather as much information as possible to help you first of all be able to take full advantage of the insurance you pay for and secondly to investigate alternative sources of funding. Also be sure to read about the importance of a special needs trust in estate planning.

Private Insurance

CHASA insurance page  an informative page written by one of our parents

Joseph Romano, Esq.   offers a free book to families of children with catastrophic illness with information on insurance, appeals, HMO's etc.

FreeAdvice.com  - many insurance questions answered and terms defined.

National Health Law Program is a helpful national advocacy resource.

Government Programs

www.InsureKidsNow.gov : Information on eligibility for Medicaid for children under 18.

Medicaid Waiver Program : federal information on the Medicaid waiver program. These services vary from state to state and individual contact numbers are given for each state.

Medicaid

Ticket to Work and Medicaid Buy-In

Social Security Benefits for Children with Disability : a government pamphlet

Medicaid Home and Community Services Primer: a comprehensive explanation with specific chapters on children's participation in the program.

Other Links

Directory of State Insurance Departments

Patient Assistance Programs offers and online directory of patient assistance programs

Choosing and Using a Health Plan - The U.S. Agency for Healthcare Research and Quality provides guidance on health plans.

Special Needs Trusts

Establishing a Special Needs Trust : a USA TODAY article.

The Special Needs Trust : an informative article on KidSource.com 

© Copyright 1997-2005, CHASA, All Rights Reserved

The information contained in this Children's Hemiplegia and Stroke Association (CHASA) Web site is not a substitute for medical advice or treatment, and CHASA recommends consultation with your doctor or health care professional.