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research
studies
CHASA is assisting several researchers in gathering information that may contribute to scientific and medical knowledge. CHASA does not endorse these studies, but simply provides this information as a courtesy to parents and researchers. If you are interested in listing a study on this page, please read the research guidelines.
Database
for Stroke in Infants and Children:
National Institute of Neurological Disorders and Stroke. This
multi-center collaborative study will establish a database of information
about stroke in infants and children.
Children 0 to 18 years of age who: 1) have had an ischemic stroke
after January 1, 2003; 2) have a history of spastic hemiplegic or
quadriplegic cerebral palsy and X-ray evidence of ischemic stroke
after January 1, 2003; or 3) are diagnosed with ischemic stroke
defined by a new focal neurologic deficit lasting 24 hours or more and
presumed due to vessel obstruction or narrowing may be eligible to
participate this study. Locations: University of California;
Los Angela, CA; Mt Sinai Medical Center, New York; Wake Forest
University, NC; Children's Hospital of Philadelphia; Cliniques
Universitaires Saint-Luc, Belgium; Hospital For Sick Children Research
Institute, Toronto; Institute of Child Health, UK.
Study of Outcome of Childhood Stroke: Seeking participants between the ages of 1 month and 16 years who have had a stroke after the start date of the study, July 1, 2008. You must live in the area of England covered by the study. Email: contact@childstroke.org.uk
Robotic Assisted Therapy for children with Hemiparetic Cerebral Palsy or Spasticity from Brain Injury, Blythedale Children's Hospital in New York. Children and adolescents must be: diagnosed as having hemiparetic CP or upper extremity spasticity, 4-18 years old, and able to play a simple video game. Phone: 914-592-7138, ext. 685
Childhood Stroke Study at the University of Chicago: Seeking people between the ages of 9-30 years old who experienced a stroke before age 13. Specifically, we are looking for people who have an injury to only one side of the brain. Participants will be compensated. University of Chicago Department of Pediatrics. Telephone: (773) 834-8874. Fax (773) 834-5261. Email: laurenfw@uchicago.edu
Clinical
Trials in Pediatric Epilepsy Language
Development Project at the University of Chicago: Seeking
children between the ages of 8 months and 36 months to participate in a
multi-year study of language learning. University of Chicago, Department
of Psychology, 5848 S. University Avenue, Chicago, IL 60637. Telephone:
(773) 834-9914; Fax: (773) 834-5261; Email: language@listhost.uchicago.edu A Pilot Study of Abnormal Acquired and Genetic Coagulation Factors in Children with Porencephaly and Stroke.
Children less than 15 years old age. 9000 Rockville Pike Bethesda, Maryland, 20892,
Dr. John Lynch, NINDS, National Institute of Neurological Disorders and Stroke, 10 Center Drive, Building 10, Room 5S220, Bethesda, MD 20892-1447; telephone: (301) 496-1714; fax: (301)
496-2358; email: lynchj@ninds.nih.gov. Constraint-Induced
Movement Therapy in Children with Cerebral Palsy. Movement
Science Program at Teachers College,
Columbia University. Recruiting children with hemiplegic cerebral
palsy between the ages of 4 and 18 years. Predictors of Outcome in Neonatal
Stroke. Contact Donna Ferreiro, M.D., Children's Hospital, University of
California, San Francisco. Gabrielle
DeVeber, Neurology and Population Studies Hospital for Sick Children, Toronto, Ontario
deveber@fhs.csu.mcmaster.ca
Completed
Studies (no longer requiring new participants) Walking Study for CP Subjects with AFO Experience
of Mothering a 3 to 6 year old Child with Hemiparesis. Doctoral
Nursing Program, Adelphi
University, Garden City, NY. Contact Diane Meehan at dianenp@aol.com.
Study has been completed. Awaiting publication.
This study involves an evaluation of your child's walking an energy expenditure with and without your brace
(AFO). Compensation may be provided for participation.Children under the age of 18 who have cerebral palsy and currently wear a brace and feel that brace is
helping them to walk. Jennifer Lelas, Spaulding Rehabilitation Hospital, 125 Nashua Street, Boston, MA 02114, Telephone:
617-573-2728
© Copyright 1997-200
The information contained in this Children's Hemiplegia and Stroke
Association (CHASA) Web site is not a substitute for medical advice or treatment, and
CHASA recommends consultation with your doctor or health care professional.