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2013 Pediatric Stroke Awareness Events

March 20, 2013 By
stride on for pediatric stroke

We love our volunteers! They've set up the following events to benefit CHASA and increase Pediatric Stroke Awareness. Let us know about any events you're planning that will benefit the Children's Hemiplegia and Stroke Association and help us keep Helping Kids with Hemiplegia.  This page will be updated weekly, so watch for new events or plan your own! April 13, 2013  Ride 4 Riley Hosted by the Volkel Cycling Team in honor of pediatric stroke survivor Riley Valkenburg, Netherlands   May 1, 2013 - May 31, 2013 Streak for Pediatric Stroke Hosted by Children's Hemiplegia and Stroke Association (CHASA) Virtual Event   May 4, 2103  Stride On For Pediatric Stroke Awareness Hosted by Matt & Shiloh Little in honor of their little pediatric stroke survivor, Jace Olathe, Kansas May 4, 2013 Walk for Pediatric Stroke Awareness Hosted by Annette Brennan Colchester, Connecticut May 4, 2013 2nd Annual Strikes for Pediatric Stroke Hosted by Abbe and Jeffrey Harpp, in … [Read more...]

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New York Childhood Stroke Picnic

March 13, 2013 By
New York Picnic - Families of Children with Hemiplegic Cerebral Palsy

Mark your calendars for the New York Childhood Stroke Picnic!! Our 2013 picnic is officially booked Sunday July 7th, 11am We will be in the same space as last year. Wantagh Park 1 King Road Wantagh, NY Covered picnic area Parking fee: $10.00 at the gate Please bring your family and friends - we had a great turnout last year and would love to see that number increase this year. Please sign up for any of the following: Volunteers to assist with: Check in and sign out of guests (just to keep track of who came, and hand out gifts to children when they leave) Assist with organized games for the children Cooking (BBQ) Set up/Clean up Items to bring: Paper goods (plates, napkins, cups) Drinks/cooler (water, soda, juice boxes) snacks (chips, cakes) food to share (anything you feel like making that will make it through the July heat - salads, etc) sports equipment (for kids to play) - there is a nice open area Join the CHASA New York – Meetup Group for more … [Read more...]

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Western Massachusetts Support Group for Families of Children with Hemiplegia or Pediatric Stroke

March 13, 2013 By
New York Picnic - Families of Children with Hemiplegic Cerebral Palsy

CHASA is excited to announce the formation of a new support group in western Massachusetts for families of children who have hemiplegia. Eliza and Kevin Maltby have generously volunteered their time to organize and direct the group. Eliza and Kevin's introduction:  We are proud parents to Hannah and Noah. When Noah was 48 hours old, he was diagnosed with having survived a perinatal ischemic stroke due to a clot.  We been a part of the CHASA listserv since our son's diagnosis in 2009. CHASA has provided us with a tremendous amount of support and guidance.  We are looking forward to raising awareness and providing support to families in Massachusetts, specifically the western MA region. The first meeting has been scheduled and we hope you'll attend! Monday, April 1, 2013 5:30 - 6:30 pm Thom Springfield Infant Toddler Services Office (Bicentennial Plaza, 1506 Allen Street, Springfield, MA) Please fill out our Western Massachusetts form for additional information. You … [Read more...]

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NDEAM Poster Art competition – Texas Artist with Disability

February 25, 2013 By
NDEAM-Poster-12

The deadline for submissions for the NDEAM Poster Art competition is coming up – March 15. Can you help us get the word out to artists and art teachers in your community? There is NO FEE for entries, and the winning artwork will be used to design the Texas NDEAM (National Disability Employment Awareness Month) Poster to be distributed statewide (and some to other states as well) this fall. The contest is open to any Texas artist with a disability. Submission Guidelines and Entry Forms are available on our NDEAM website, or contact me for more info.     Save the Date: Barbara Jordan Media Awards April 13, 7:00pm, University of Texas at Arlington Jo Virgil, Community Outreach and Information Coordinator Texas Governor's Committee on People with Disabilities P.O. Box 12428 Austin TX 78711 512.463.5740 or Relay Option of your Choice 512.463.5745 - Fax jo.virgil@governor.state.tx.us http://governor.state.tx.us/disabilities/ … [Read more...]

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2013 CHASA Family Retreat – For Families of Children, Teens, and Young Adults with Hemiplegia

January 26, 2013 By

Ready to Party? Are you ready to party with some fun and crazy families of kids, teens, and adults who have hemiplegia? Join over 200 people who "get it" for 4+ days of fun and relaxation. Research shows that knowing peers who are like you is very important for the psycho-social development of children, especially for children with disabilities and their siblings. Each year, the Children's Hemiplegia and Stroke Association (CHASA) hosts a family retreat where families can socialize, share ideas, and have FUN! Parents, kids with hemiplegia, their siblings, and sometimes a few aunts, uncles, cousins or grandparents attend and make this truly a family event. We have an equal number of kids in all age groups - from about 1 year old up to 30 years old!  You can be assured that you and your child will find a buddy. If you're an adult with hemiplegia, you'll enjoy getting to know others who may have shared similar experiences. Dates Sunday, July 14, 2013 at 2:30 pm  to Wednesday, … [Read more...]

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NYC Marathoner Runs for Infant Stroke Survivors

November 2, 2012 By
Susan-Dodge-NYC-Marathon- Running for Pediatric Stroke Survivors

This story is about community. Two moms. One little boy who survived a stroke. And helping pediatric stroke survivors worldwide. Susan Dodge will run in the 2013 NYC Marathon on Sunday, November 4th, and parents of pediatric stroke survivors from around the world will cheer her on - some in person and many in their hearts. Susie's Story In May of 2011 I gave birth to my second child , Samantha. After gaining 50 pounds I knew that I need to do something to lose it. I had a 20 month old, a newborn and not a lot of free time, so I got creative. I got a stroller and started running. After a few months of running I decided to do some organized runs to qualify for the New York city Marathon. By December, I was qualified and excepted to run the marathon. Now the real work began. Running became my daily mediation and my healing to much of life; however, I still had this feeling that I was running the marathon without purpose. I had lost the weight and felt great, but I knew something was … [Read more...]

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New York Families with Child with Hemiplegia Meet Up

October 11, 2012 By
Families of Child with Hemiplegia Meetup at strong museum of play - New York

Join New York area families of children who are pediatric stroke survivors or who have hemiplegia for a fun-filled outing to the Strong Museum of Play. Date: Saturday, October 13, 2012 Time: 12:00 pm - meet by the admissions area Place: Strong Museum of Play, One Manhattan Square, Rochester, NY  14607, 585-263-2700 Visit this event on Facebook for more information. Thanks to New York Director Maria Casella for planning this event!  We love our volunteers!! … [Read more...]

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Hemiplegic Cerebral Palsy Ohio Meet Up

September 18, 2012 By
Hemiplegic Cerebral Palsy Parent Meeting in Ohio

Join families of children who have hemiplegic cerebral palsy in Delaware, Ohio. Saturday, October 20, 2012 1:00 PM EDT Parents will talk. Kids will play. Maybe a pot luck lunch? More information on the Ohio meet up for families of children with hemiplegic cerebral palsy. … [Read more...]

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Illinois Pediatric Stroke Survivors We Love You 5K

September 5, 2012 By
psslogo

Gina and J. J. Schwan of Glen Ellyn, Illinois are dedicated supporters of CHASA's mission to better the lives of our youngest stroke survivors - babies and children who have experienced a stroke before, during, or after they're born. Gina shares details about the 2012 event below. As many of you know, my husband and I put on a family-friendly race, the PSS (Pediatric Stroke Survivors) We Love You 5K,  every year to raise money for pediatric stroke survivors.  Our family was touched by pediatric stroke when my son, Johnny, had a stroke while he was still in-utero.  Luckily his stroke was very mild and he's on his way to making a great recovery.  Many kids aren't so lucky. All the funds from our race go to the Children's Hemiplegia and Stroke Association (CHASA), a not-for-profit organization that sets up programs for these kids. Unlike a lot of other charities, CHASA is very lean and we're able to get direct updates as to which programs the race helps. We were able to raise … [Read more...]

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New York Childhood Stroke Awareness Picnic

July 5, 2012 By
New York Picnic - Families of Children with Hemiplegic Cerebral Palsy

Join New York area families of children who are pediatric stroke survivors or who have hemiplegia for our 3rd Annual Picnic. Date: July 8th 2012 Time: 11:00am – 3:00pm Place: Wantagh Park - Covered Picnic area Please bring your favorite picnic lunch/snack to share with all. We will provide burgers & hot dogs at the event. Raffles & Fundraising will benefit CHASA (Children’s Hemiplegia and Stroke Association) http://www.chasa.org/   Directions to Wantagh park: Wantagh Park is located at the Intersection of Woodland Avenue and Merrick Road ; the entrance is on the south side of Merrick Road . (The sign is not easily seen from Merrick Road .) Take the Southern State or Northern State Parkway to the Wantagh Parkway, south . Exit onto Sunrise Highway (Rt 27), east. Go east on Sunrise Highway to Wantagh Avenue . Make a right onto Wantagh Avenue to the end, and make a right onto Merrick Road . Go under the overpass. At the first traffic light, make a … [Read more...]

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